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December 04, 2021  
FORUMS: Read-Only

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Topic Title: Cardiomyopathy
Created On: 06/21/2002 03:36 AM
 
 12/07/2002 12:52 AM

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ces2002ca

HI, I also have Cardiomyopathy, but it was congenital Heart Disease. I was diagnosed at the age of 10 and am now 32. There is no cure except for a transplant which I am now on a list for in Canada. It can only be regulated through medication. I use Digoxin, hyzaar(High Blood Pressure), losartin, and recently began Coumadin (pharmaceutical grade warfarin/rat poison). My specialist tells me that I will need a transplant within the next 5 yrs.
 11/27/2002 04:02 PM

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Rebcooper

I have questions about Cardiomyopathies: I am 47, a personal trainer, I do not have CAD, but now find that I have an EF of 36%, Hypertension, LVBB and Dilated Cardiomyopathy. Since I have had previous echocardiograms, I know this is not an inherited diseaase. I ma now on Coreg and Antacad. Additionally my cardiologist advises that I take Co-enzyme Q-10. H ehopes for improvement, yet I read taht EF and Cardiomyopathies are not curable...so where does the improvement come in? If , after 2 months I am not improved, I will be recommended for a resynchronization devise to be ( installed) put into to co-ordinate my Ventricles. I do not remember being sick last summer. I was totatlly healthy last spring, so why did I suddenly fall ill? I read that anemia my cause a Cardiomyopathy, perhaps I should be tested again. I also wonder what came first? LVBB, HP, Cardiomyopathy? Also my LVBBB is intermittent, only occurs when my HR is above 100. Please advise, Rebecca
 08/23/2002 04:01 PM

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30323915

Not sure if you've been there or not, but the Cardiomyopathy Association web site may have some valuable information for you. It's at cardiomyopathy.org/homepage.htm">http://www.cardiomyopathy.org/homepage.htm. Hope this helps! Best of luck to you, your husband and family.
 06/21/2002 03:36 AM

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snoddy123

Hello My husband was just diagnos with cardiomyopathy. He's really being silent about the whole situation. How do i help him, and do my part to help? i'm really scared, not only for me but for all the childrens. How do i find out more about this disease?
     
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