I cannot say I have the same problem but this iste exists for a reason- one of them is to remind patients that sometimes it is in your right and necessary for you to go direct to the medical technology companies to helpr esolve your problem. Thats why there's a medtech1 and thats why this place is sponsored by Guidant. Perhaps your doctor does not know of any new technologie sthat can help you- or perhaps the technology companies need to know that there is market (specifically those like you with a certain problem) need that they should do research and developmemt to fulfill. In either case there is no harm in contacting the medical technology companies directly to see what solutions have been considered. I really hope your problem can be resolved, although unfortunately this is about the full capacity of my capabilities in helping you.